Frauengesundheitsforschung
Risk communication in cancer genetics: lay people's expectations and providers' practices (Criscom)
The heterogeneity of Cancer genetic clinics content is poorly documented at the European level, and no comparative data exist on the expectations and health priorities
perceived both by lay people and by health care providers. The general objective of this project is to co-ordinate activities to prepare a European RTD project on lay
people's expectations and on providers' practices on risk communication in cancer genetics in 8 European countries. The steps are first to design a study to compare the
content of national cancer genetic clinics through standardised measurements and second to design and to cross-culturally validate two protocols and their measurement
tools (questionnaires in every national language). This will be carried out through panels that will work on specific objectives and meet to share their positions during 3
workshops.
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