Westfälische Wilhelms-Universität
Münster
|
Institut für Humangenetik Vesaliusweg 12-14 48149 Münster Direktor: Prof. Dr. Jürgen Horst |
Tel. (0251) 83-55400
Fax: (0251) 83-56995 e-mail: horstj@uni-muenster.de www: http://www.klinikum.uni-muenster.de/institute/ihg/ |
|
Forschungsschwerpunkte 2001 - 2002 Fachbereich 05 - Medizinische Fakultät |
||||
Genetics education:
New genetics information and technologies are expanding rapidly. The rate of increase of health professional
trained in genetics and genetic counseling has not kept pace with the rate of increase of genetic discovery and
demand for genetic tests and services. As genetic testing moves into the main stream of health care these tests
will be increasingly administered by physicians with no training in genetics. There is growing concern that
physicians outside genetics cannot interpret genetic tests adequately to patients and are often not in compliance
with ethical and clinical guidelines especially regarding informed consent and indications for testing. In 1996
and 1999 the partners of this research project successfully completed 2 studies on the provision of genetic
services in Europe (funded by Biomed). Based upon data from these studies this research project aims to
launch a European collaborative education initiative between genetics specialists, patient support groups and
professional associations of non-genetics health professionals. The first step towards this goal will be the
identification of priority needs for education based upon empirical evidence. An extensive survey will be
conducted among non-genetics health professionals.
Drittmittelgeber: Beteiligte Wissenschaftler: Veröffentlichungen: |
||||