Ethics and Genetics - An international survey in 37 countries

An anonymous questionnaire including "choice of action" questions in response to given situations covering topics such as: DNA-banking policies, access to stored DNA, screening at the workplace, CF carrier screening, use of BRCA 1/2 testing, provision of newborn screening, testing of children and minors and non-medical use of genetic tests was distributed to geneticists in 37 nations world-wide.

Drittmittelgeber:

National Institutes of Health, Human Genome Project

Beteiligte Wissenschaftler:

Prof. Dr. Dorothy Wertz, Prof. Dr. Irmgard Nippert, Prof. Dr. Gerhard Wolff

Veröffentlichungen:

Nippert, I., Wolff, G.: Ethik und Genetik: Ergebnisse der Umfrage zu Problemaspekten angewandter Humangenetik. In: Medizinische Genetik 11(1999) 53-60

Wolff, G., Wertz, D., Nippert, I.: Ethik und Genetik: Ergebnisse der Umfrage zu Problemaspekten angewandter Humangenetik, Teil II. In: Medizinische Genetik 11(1999) 308-318

Nippert, I., Neitzel, H., Wolff, G. (eds.): The new genetics: From research into health care - social and ethical implications for users and providers. Springer Verlag, Berlin, Heidelberg, New York, 1999

Nippert, I., Neitzel, H., Wolff, G.: The New Genetics: From Research into Health Care - Social and Ethical Implications for Users and Providers. In: Nippert, I., Neitzel, H., Wolff, G. (eds.): The new genetics: From research into health care - social and ethical implications for users and providers, Springer Verlag, Berlin, Heidelberg, New York, 1999, 1-5

Nippert, I., Wolff, G.: Consenus and Variation among Medical Geneticists and Patients on the Provision of the New Genetics in Germany - Data from the 1994-1996 Survey among Medical Geneticists and Patients. In: Nippert, I., Neitzel, H., Wolff, G. (eds.): The new genetics: From research into health care - social and ethical implications for users and providers, Springer Verlag, Berlin, Heidelberg, New York, 1999, 95-106

Wolff, G., Wertz, D., Nippert, I.: Consensus and Variation on the Provision of Genetic Services among German and French Geneticists. Medizinische Genetik 11 (1999), S. 127

Nippert, I., Wolff, G., Horst, J.: Consensus and variation on the provision of genetic services among clinical (MD) and lab (PhD) geneticists: A report from a nationwide survey in Germany. European Journal of Human Genetics 7, Suppl. 1, (1999)

Nippert, I., Wolff, G., Wertz D.: Consensus and Variation on the Provision of Genetic Services among Clinical (MD) and Lab (PhD) Geneticists: A Report from a nationwide survey in Germany. Medizinische Genetik 12 (2000), S. 64

Nippert, I., Wolff, G., Horst, J., Wertz, D.: Consensus and variation upon the provision of genetic services among patients and geneticists: A report from a nationwide survey in Germany 1994-1996. European Journal of Human Genetics 8, Suppl. 1, (2000) S. 174