Westfälische Wilhelms-Universität
Münster
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Institut für Humangenetik Vesaliusweg 12-14 48149 Münster Direktor: Prof. Dr. Jürgen Horst |
Tel. (0251) 83-55400
Fax: (0251) 83-56995 e-mail: horstj@uni-muenster.de www: http://www.klinikum.uni-muenster.de/institute/ihg/ |
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Forschungsschwerpunkte 2001 - 2002 Fachbereich 05 - Medizinische Fakultät |
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Risk communication in cancer genetics:
The heterogeneity of Cancer genetic clinics content is poorly documented at the European level, and no
comparative data exist on the expectations and health priorities perceived both by lay people and by health care
providers. The general objective of this project is to co-ordinate activities to prepare a European RTD project
on lay people's expectations and on providers' practices on risk communication in cancer genetics in 8
European countries. The steps are first to design a study to compare the content of national cancer genetic
clinics through standardised measurements and second to design and to cross-culturally validate two protocols
and their measurement tools (questionnaires in every national language). This will be carried out through
panels that will work on specific objectives and meet to share their positions during 3 workshops.
Drittmittelgeber: Beteiligte Wissenschaftler: |
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